Savion's Smile!

There has been so much happening in our lives and so many have been touched by Savion, his story, and his resilience!! Brian J. Kelley, has produced and released an instrumental song titled "Savion's Smile"! We are truly honored and blessed for this!! I told you that smile of the Prince is sooooo infectious!! You can purchase a copy of this song on itunes or amazon.com. This song is truly uplifting, and you can not help but to smile as you listen to it! The first time Savion heard the song, he actually started to bounce to it! So I know if he enjoyed it, you will too!! Thank you for supporting such an awesome cause!!
BUY YOUR COPY OF SAVION'S SMILE HERE!!

Smiles 4 Savion Benefit was a true success! It was amazing! So many people came out to support Smiles 4 Savion! There were some fantastic gifts and baskets won!!! The love and support that everyone showed us truly still has me speechless! To think that Savion, who has never spoken a word since he was about 11 months old, could have such an impact on so many just warms my heart! it makes you truly appreciate the little things in life, His infectious smile has impacted so many! He truly is my hero and is a warrior!! He continues to amaze us!! We are excited to see all of what God has in store for him, and can not wait for Savion himself, to share his testimony!!! Never Giving up Hope and Never Losing Faith!!!

I'm talking on the phone, handling some very important business!!

Savion took some amazing shots thanks to Patrick Rodio! Check out some of his work!
http://www.facebook.com/messages/1524741863#!/PJRPhoto

SAVION HAS BEEN SEIZURE FREE FOR TWO MONTHS!!

So it's been a while but there is so much to tell! On Tuesday, Savion went in for an overnight EEG, and for the first time in a very long time, he actually slept through the night!! (Go figure LOL) Anyway, the EEG shower NO HYPPS! That is a tremendous deal! YOU see it was those nasty hypps, or chaotic brain patterns, that caused Savion's brain to be disorganized and chaotic! While in the hospital, I did think that I saw Savion have a spasm, however, the EEG didn't show that it was one, and when it happened he was tangled in a bunch of cords from the EEG probes. So with that said, SAVION HAS BEEN SEIZURE FREE FOR TWO MONTHS!!! He continues to amaze us with his infectious smile. He is laughing more playing more and even beginning to walk more steadily. He also has gained some advancements in his receptive language ability. When I tell him to come here, he DOES!! I told him to pick up his cup the other night from the floor, and HE DID!!! SO please continue to pray for him they are truly needed!!